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Living with Narcolepsy - Comorbidities

Hosted By
Jenny R.
Monday, May 06, 2024 | 07:00pm - 08:00pm EDT
Free
11 seats remaining
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About this meeting
Navigating multiple medical diagnoses can be challenging! Living with Narcolepsy- Comorbidities is a unique group for individuals that experience the daily management of multiple health diagnoses along with Narcolepsy. The group is an open drop-in for adults living with Narcolepsy and at least one other chronic condition that affects daily life or function. The group offers weekly support based on participant needs as they arise. Led by people directly affected by multiple chronic conditions, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWNs, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform.
Hosts

  • Host

    Jenny R.

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  • Co-host

    Adam L.

    Peer Supporter

    Certified Peer Supporter

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  • 2nd Co-host

    Kjerstin H.

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About the host
Hello! I am the Peer Support Group Coordinator for Wake Up Narcolepsy, and we are always looking for ways to improve the supports you need! My daughter, now 12, was diagnosed with Type 2 Narcolepsy when she was 8 years old. I was completely unprepared for the diagnosis and had so many questions. Desperately looking for answers and support, I wandered upon Wake Up Narcolepsy's website where I found a wealth of great information. Since then, I have made connections across the nation that have proven to be invaluable for learning how to navigate this condition. The support I have found within the support groups is allowing me to be a better advocate for my daughter and provide answers and ideas to the questions we both have. I hope you find the same. Join meetings weekly or as your schedule allows. We appreciate feedback and hope you will share ideas for improving upon what we have. Thank you for joining us! We look forward to getting to know you!
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Registration Closed
Attendees (9)
jazzp1996 KellySleeper Outcastrogue Dan Fgorems narcolepticbun BrianHope leigh mosesjh06
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Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony Biosciences & Takeda.