Chronic illness

Living with Cystinosis Support Group

Hosted By
Kerry H.
Tuesday, Jun 18, 2024 | 04:00pm - 05:00pm PDT
17 seats remaining
About this meeting
The Living with Cystinosis Support Group is for adults living with the rare disease, cystinosis. This group meets on the 3rd Tuesday of each month from 4-5pm PST / 7-8pm EST and is facilitated by clinical social worker, Kerry Heckman, MSW, LICSW.

The host has not provided any information about themselves.
Recent reviews
Welcoming, kind, gentle, moved group along thoughtfully.
May 08, 2024
Kerry is easy to talk to and very kind and compassionate. She always makes the meetings feel safe.
Apr 17, 2024
Kerry is excellent! She ensures that everyone gets a chance to speak, allows people to react to the discussion, and shows empathy.
Oct 04, 2023
Kerry is EXCELLENT!! She holds space beautifully by allowing everyone a turn to speak while also ensuring there's time for each participant. I've never felt rushed by her and she is actively engaged and listening to all of our experiences. She is wonderful.
Oct 04, 2023
Soooo many people need these groups! Thank you, Kerry, and thank you, CCI. Susan
Aug 02, 2023
It was a good community
Jul 05, 2023
Jun 21, 2023
I am SO grateful for these chronic illness support groups. I feel VERY isolated where I am geographically
Jun 07, 2023
everyone had a chance to talk several times, it was a great experience
May 03, 2023
Registration Closed
Attendees (3)
SteveSchleuder carlykwine RebekahP
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Center for Chronic Illness

The Center for Chronic Illness (CCI) is a 501(c)3 nonprofit organization promoting well-being and decreasing isolation for those impacted by ongoing health challenges through support and education. CCI offers free, peer support groups facilitated by licensed mental health professionals and Master's level mental health interns. CCI's programs are designed to bring people together who live with different types of health challenges and diagnoses, recognizing the shared emotional experience of many who are impacted by chronic illness. Please note, because we are a Seattle-based organization, all support groups are scheduled on Pacific Standard Time (PST).

The Center for Chronic Illness provides support and education for those impacted by ongoing health challenges through our professionally-facilitated peer support groups. Although the information and support provided can be psycho-educational in nature, our support groups are not counseling or therapy groups, and we are not providing healthcare services. You should not use the information contained herein for diagnosing or treating any health condition. Participation in our facilitated peer support groups does not create a psychotherapist/patient relationship. You should always consult with a doctor and / or other health care professional for medical advice or information about diagnosis and treatment. If you are in a need of immediate medical attention or crisis support, please call 9-1-1 or the National Suicide Hotline at 1-(800) 273-8255 without delay.

To learn more about the Center for Chronic Illness, visit our website at or contact us with questions at or (425) 296-2705.

While our programs are offered free of cost, we rely on donations from members in our community to be able to provide these services. If you are able, please consider making a contribution.

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